WE NEED TO CONTINUE TO DRIVE RESEARCH IN EPILEPSY
The AEP Platform will link people with epilepsy, clinicians, community hubs, research groups, institutions, start-ups, industry and med-tech with one another.
The platform will drive major advances in decision support tools for epilepsy. The AEP dataset will provide a rich resource for addressing many other traditional science and mechanistic questions in epilepsy to progress epilepsy research worldwide.
Elements of the AEP dataset will be made accessible to the research community through a series of staged public data releases. This will provide the international research community with open access to highly curated, multimodal, large scale epilepsy cohort data. By ‘open sourcing’ the data in an ethically responsible way, the AEP platform will promote the greatest likelihood of breakthrough science that will transform the lives of people with epilepsy.
AEP will introduce a scalable platform business model to connect research, clinical care and med tech for all Australians.
“The Australian Epilepsy Project will cement Australian researchers as the innovation leaders in the brain sciences.”
Chris Tailby, Researcher and Neuropsychologist
“Over the past two decades, both in the UK and Australia, I have been extremely fortunate to work alongside world-leading clinical and research teams whose focus has been to improve through brain research the diagnosis of disease and the healthcare outcomes of patients around the globe.”
Shawna Farquharson - Chief Research Radiographer Florey
“The quality and quantity of data we acquire here will have huge implications for Epilepsy sufferers, both present and future.”
Rob Smith – Senior Research Officer – Imaging Division
“The AEP will provide access to a whole range of novel epilepsy treatments not previously available. It will make Australia the world-wide ‘go-to’ location for conducting Epilepsy research.”
Paul Lightfoot – Clinical Trials Manager – Austin
“Everyone deserves access to the best standard of care. The AEP makes this possible for all Australian’s with Epilepsy.”
Olivia Lavalette – Clinical trials Coordinator
“With the AEP platform, we will be able to change the epilepsy world – not just study it.”
Magdalena Kowalczyk – Research Scientist
“I’m a small part of something incredibly big – bringing Australia’s delivery of healthcare into the future and facilitating a transition towards a prevention focused mindset.”
Maria Rychkova – Research Scientist
WE NEED TO UNLOCK THE ADVANCED TECHNOLOGIES TRAPPED IN RESEARCH
We have the answers but they are trapped in research. There is a 30 year translational gap between research and clinical care.
Integrated analysis of the three core AEP data modalities – imaging, genetics, cognition – gives a deep understanding of brain function in epilepsy.
Sophisticated informatics technologies will be used to curate large data sets.
Artificial Intelligence algorithms will reveal hidden patterns in these data sets, providing diagnostic information and outcomes prediction to optimise treatment pathways.
This model of health care will be scalable and translatable across all brain diseases.