Researcher Header Crystal

REFERRALS INTO
THE AEP WILL BE
ACCEPTED VIA A
TREATING NEUROLOGIST
ONCE THE PROJECT
COMMENCES.

The AEP is not accepting referrals into the project at this time. We will begin accepting referrals if and when our bid for funding is successful. You can stay informed by joining the   AEP MAILING LIST

WHAT DOES THE FUTURE AEP PARTICIPANT JOURNEY LOOK LIKE?

THe Participant is referred to their local AEP community Hub by their neurologist via AEP Web central. THE Participant is sent a referral pack (including information about the project, PICF and initial questionnaires) either electronically or hard-copy.

The Local AEP Community Hub coordinator contacts The participant via telephone or videocall. Verbal or electronic consent to obtain medical records is established. Once MRI safety and full project eligibility is confirmed, the participants appointments are booked.

Baseline epilepsy interview (90min) and Cognitive testing (90min) are performed via videocall.

The Participant attends Community Hub MRI facility for MRI scan (60 + 30min) after confirming COVID-19 status.

The Participant attends local community pathology service for blood draw.

The Participant returns to their treating neurologist (in person or via telehealth consultation) who discusses the results of The AEP report with them and determines the most effective treatment based on the results of the AEP report.

The Participant IS contacted via phone at 6, 12 and 24 months to collect information about their epilepsy, cognition and quality of life status.

WITHOUT THIS GROUNDBREAKING PROJECT

People living with epilepsy will continue to be uncertain about their next seizure, remain in a trial and error cycle with medications at risk of dangerous side effects or waiting many years to access potentially life changing surgery.

Ready to help raise awareness?

  1. SHOW YOUR SUPPORT Sign our digital support board and write to Greg Hunt, Minister for Health
  2. BE VOCAL Talk about this project with your neurologist, GP, friends and family #epilepsyproject
  3. WRITE to Greg Hunt, Minister for Health Ministerial office:
    PO Box 6022 Parliament house Canberra ACT 2600 / Contact Form

GET SUPPPORT

If you or someone you know is living with epilepsy, there are support groups that may help you navigate this difficult time.

1300 761 487

1300 374 537