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Pandemic prompts improvements in access to healthcare

August 14, 2023
Sam Jackson

The COVID-19 pandemic had a devastating global economic and social impact. As the world went into lockdown, businesses were fast-tracked into digital transformations with technological advancements accelerated by several years.

For the Australian Epilepsy Project (AEP) the pandemic prompted transition from traditional face-to-face neuropsychology testing to teleneuropsychology (teleNP), enabling continued safe operations during the pilot phase of the study.

A necessitated adaption to a teleNP model has seen delivery of verbal tasks via videoconference, visual stimulus delivery via document camera, webhosting, computerised assessments, substitution of written tests to oral versions, online delivery of questionnaires as well as the discontinuation of any tasks that became telehealth incompatible.

Now in the main phase of the study, the integration of a teleNP tool represents a medium through which clinical research and important clinical care can continue, and an opportunity to expand the reach and breadth of neuropsychological services.

The potential benefits of teleNP have long been recognised, including convenience, improved access, user satisfaction, and potential cost-reductions. However, the suitability of teleNP for certain patient groups such as paediatrics, people with an intellectual disability, and linguistically and culturally diverse members of the population, does pose some important issues along with access to technology and suitable hardware to support videoconference-based testing.

That said, it would seem the social distancing measures born out of the pandemic are likely to be around for some time and thus highlights the importance of continually developing testing options via a telehealth setting, to improve access to neuropsychological testing beyond the pandemic.

Read more on how the AEP’s model of telehealth-based operations provides a template for the future landscape of healthcare.

Teleneuropsychology in the time of COVID-19: the experience of the Australian Epilepsy Project – seizure: European journal of epilepsy 2020
Tailby C, Collins AC, Vaughan D, Abbott DF, O’Shea M, Helmstaedter C, Jackson G.

AEP Participant: Bruce Jeffrey

It was the day before his birthday, in February 2022, when Bruce experienced his first seizure during the night. “I was completely unaware of what was happening and only gained consciousness in the ambulance.”

AEP Participant: Gary Alway

Gary has been living with epilepsy for almost three decades. In his early 20s his epilepsy was fairly-well managed with medication, and his seizures were rare. But then everything changed. He began having multiple seizures and blackouts every day, culminating in a car crash nine years ago, caused by a seizure.

AEP Participant: Fiona Waugh

Fiona didn’t experience her first seizure until 34-years-of-age and after a further two tonic clonic seizures in as many days, she was diagnosed with epilepsy. “Since diagnosis I’ve remained drug-resistant with a high frequency of seizure activity. But I’ve always had a desire to try and get on top of it, which has led me to make some big treatment decisions over the years.”