Genetics data
Molecular karyotype and copy number variant.
Available sample size:
500 epilepsy participants (18-67 years)
Advancing the understanding of epilepsy through collaborative research
The Australian Epilepsy Project (AEP) welcomes external researchers to leverage our comprehensive dataset to drive innovative studies and insights that can improve epilepsy care and outcomes.
About our data
With the Australian Epilepsy Project (AEP) you get access to 3 main data types. This rich dataset is designed to support a wide range of research objectives, from understanding the underlying mechanisms of epilepsy to developing personalised treatment strategies.
Cognitive assessments
Evaluations of cognitive function.
Available sample size:
500 epilepsy participants (18-67 years)
300 healthy volunteers (18-67 years)
Neuroimaging
High resolution MRI data.
Available sample size:
500 epilepsy participants (18-67 years)
300 healthy volunteers (18-67 years)
Online questionnaires
Data on a range of exposures and health outcomes that are difficult to assess via routine health records, including diet, alcohol consumption, sleep and quality of life.
Available sample size:
500 epilepsy participants (18-67 years)
Accessing the AEP’s data
Expressions of Interest
Researchers can submit an Expression of Interest (EOI) to request access to AEP’s data.
How to Apply
Complete the Expressions of Interest (EOI) Form
Submit your EOI online. You will need to provide details about your research project, including objectives, methodology and anticipated outcomes.
Approval process
Once submitted, your EOI will be reviewed by the AEP Data Access Committee. This process may take 4 - 6 weeks, after which you will be notified of the outcome.
Signed Agreement
If your application is approved, you will be required to sign an agreement outlining the terms of data usage, security and confidentiality.
Data Access Granted
Once agreements have been signed, data access will be granted.
Collaborate with us
Our partners and supporters
The Australian Epilepsy Project is made possible through the combined support of The Florey and University of Melbourne.
The Australian Epilepsy Project (AEP) receives funding from the Australian Government under the Medical Research Future Fund.
FAQs
We encourage you to contact us directly if you have any additional questions.
Who can apply for access?
Access is open to qualified researchers from academic, clinical and industry backgrounds.
Is there a fee for accessing the data?
There may be a cost associated with accessing AEP’s dataset, which will be discussed upon approval.
Can I publish my findings?
Yes, we encourage publication of research findings providing that they adhere to any agreements executed and proper acknowledgment of AEP is given.
Still have questions?
We’re here to help. We’ll be happy to help you with any questions you may have.