Yesterday marked the last day of the 2020 Walk for Epilepsy. It was very different this year as it was a virtual walk – walking solo and contributing to a collective goal. At time of writing 1,205 people completed the walk, the collective distance was 74,195 kilometers which is the equivalent of walking just under…

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The AEP was hoping to be sharing news of the result of MRFF Stage 2 grant in the coming week. Unfortunately we have been advised that the MRFF Stage 2 decision announcement has been delayed. We are awaiting a firm revised date however, we understand it will be delayed till end of October/early November. Please…

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This week, the Australian Epilepsy Project (AEP) team will complete the Final Panel Interview with the Medical Research Future Fund. This is the final step in the process to bid for the funding to launch the project into Stage 2 which would see the AEP rolled out nationally. It has been 12months of solid work…

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Recently Chief investigator – Graeme Jackson, Lived Experience Ambassadors – Rachel Vella and Wally Lewis and pilot study participant – Caroline Kedulka completed a day of filming with the team from ABCs 7.30 Report. Stay tuned for details on when the story will air on ABC   Spread the word, if you have not already.…

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The team at the AEP has been working hard for the last 12 months in anticipation of this very date! On Monday 29th June we will submit our proposal to the Department of Industry to bid for up to $100M of Medical Research Future Fund (MRFF) funding to commence the Australian Epilepsy Project. Successful applicants…

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Participant AG, a 42 year old female with refractory epilepsy, went through the AEP Pilot testing protocol and shares her feedback after the testing journey.   “I visited my usual neurologist at the Austin for my refractory epilepsy and he referred me to the Australian Epilepsy Project (AEP) Pilot project. I have been experiencing constant…

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While COVID dominates out thoughts, people still become ill with serious Neurological disorders. If people have a seizure, or seizures are not controlled, it is important that they still get investigated and treated in the best way possible, in a timely manner and in a safe environment. Delays can have serious long-term consequences.

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26th March is Purple Day, global initiative dedicated to raising awareness of epilepsy. Each year on this date people around the world are invited to wear purple and host or get involved in local epilepsy initiatives and events. This year, Purple Day looks a little different, with social distancing measures and restrictions on public gatherings due…

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